About Us

We are a newly diagnosed family with epilepsy.  Squirrel (15 years old in 10th grade) was diagnosed 2/23/2010 with complex partial epilepsy.

It has hit her like a ton of bricks… she is going through the whole realm of feelings and fighting to gain some normalcy and some less fear.

This blog (since I can’t really find many blogs out there to help with where we are and I want desperately to help someone else where we are…) is a combination of all of the information I can find on epilepsy… especially as it pertains to “older” individuals since there seems to be more information on very young people with the condition.

We are trying to build a support system and find information… so here we are

mom… dad… squirrel… big brother… and tiny white wired bichon…

8 Comments (+add yours?)

  1. Alysse Mengason
    Mar 06, 2010 @ 10:21:36

    Hello! I just stumbled upon your site/blog via Twitter–there are actually SO many resources out there on the web. We are a small community, yes…but we are mighty! And, we are very friendly! I have a blog, http://www.brainthunder.com, and you can find me on Facebook and on Twitter. Feel free to stay in touch and we can chat! I am a wife, Mom and I was diagnosed with Epilepsy more than 7 years ago after I suffered a bout of encephilitis and meningitis–I nearly died after a long coma.
    Also, I invite you to join some of the e-communities—they can be very good resources and you can make some super friends. The Epilepsy Foundation of America has a very active site, (if you haven’t yet discovered it)…http://epilepsyfoundation.ning.com/
    I hope Squirrel is doing well. It is a fight, but you can live a very full life!! Hang in there!!
    Alysse

    Reply

  2. Robyn Flach
    May 13, 2010 @ 09:29:55

    Hi,
    I also came across this via a post on Twitter (I am @justrobyn on Twitter). My daughter was diagnosed out of the blue about 3 1/2 years ago at the age of 20. It’s really been a process to learn to deal with it and carry on, and I’m always so impressed at the beautiful character this brings out in her. She has a blog as well, but hasnt updated it for sometime: http://www.baileysworld.wordpress.com

    She has had to switch medications several times, and it looks like she will probably have to switch again in a few weeks – she’s developed kidney stones, and the med she is on right now is known to contribute to that. Just another one of the chapters in this book to deal with, but for the most part, she is an independent, beautiful intelligent girl. She is finishing college, dating, and living on her own.

    Looking forward to visiting your site often, and please let me know if I can ever help, even just by listening.

    Robyn

    Reply

    • alicorndreams
      May 13, 2010 @ 09:49:31

      Listening is really all that anyone can ask for.
      Some days a diamond… some days a stone…

      Today… Today, we made it through another day. Amandya gets her loopy times from the Keppra… and then she’s not thrilled but is fun to watch…

      Thanks for being there to listen!
      April

      Reply

      • dee
        Jun 26, 2010 @ 18:50:23

        Hi,

        I came across your site on facebook and love it! Refreshing to know I am not the only Mom who feels this way. My daughter is 14 and was diagnosed w/Epilepsy 2 yrs ago. However, she hadnt had any grand mal seizures until March of this year. Still trying to get her meds right. How much can a little kid take. I sometimes wonder if we are harming her in other ways just to try and tame the seizures. Looking forward to more posts!

        Reply

  3. Heather
    Aug 18, 2010 @ 10:50:34

    There are so many resources out there and great charities to get involved with. Each state has it’s own Epilepsy Foundation. Got to the national site and find yours and SUPPORT it!
    http://www.epilepsyfoundation.org/

    Reply

  4. Trackback: 2010 in review « A Day Like No Other
  5. thegamesmybrainplays
    Jan 20, 2015 @ 11:41:22

    Great site. I have one too. thegamesmybrainplays.com would love your insight.

    Reply

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