Will You Be Next?

This was posted, several times by some marvelous people, on Facebook the last few days.  It made me really really think…

 

“Every four minutes, a person in the US is diagnosed with Epilepsy. By the time you’ve finished checking your facebook news feed someone will hear the words, “you/your child has Epilepsy ” Epilepsy is more common than Autism, Multiple Sclerosis and Parkinson’s Disease Combined…..yes Combined!!!!! Yet somehow Epilepsy remains a mystery to most people and receives the least amount of funding and awareness.”

 

It was me.  Was it almost two years ago now?

It has changed our lives in some amazing ways.  Now, we look at things way differently.  Small things mean more.  Family and true friends mean more.

We are still a (not quite) normal family with very normal crap going on.  School, grades, bullying, after school activities, I want,  Can we get, Oh by the way I forgot to tell you….

But now that the stuff that nightmares are made of has settled into our new normal, the small things like seeing a post on Facebook from family is enough to send us into an amazing evening of giggles and smiles.

Dreams are having to evolve.  That breaks my heart because I know how much dreams really can mean and I have never ever wanted to tell my babies that they can’t do something… but the reality is that there are a lot of things that people with epilepsy can’t do.  It is just a matter of tooling the dream to what can be done.

If you are one of the ones who stumbled onto this place because you have heart the words that your child (you, your spouse or other loved one, you friend, your mother/father….whoever) has epilepsy… you aren’t alone.  You have a whole world of fears and emotions that will play through your world in the coming days/weeks/months/years.  But you are SO not alone.

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