Even if you don’t Diastat

I am the (not so) proud owner of several hundred dollars worth of Diastat, just in case.  Just in case we have a break through seizure that lasts more than 5 minutes (does anyone else realize that five minutes is about 600 years in mommy years when someone is seizing) so we can settle down her brain and keep her safer.  We have never used one.  I hope they expire and I never have to use them.

HOWEVER… that isn’t the purpose of this post.

I found (go figure) the DIASTAT website.  This website is awesome.  It has acres of information and forms to help plan and track and live a better life.  It is an amazingly deep source for real living with Epilepsy.  You can sign up for a free carrying case (you can get 2 for free) for the diastat containers.  There are VHS how to use videos.  They have really robust Seizure Preparedness Planning resources that can help to not only plan for life in general as someone how might have a seizure, but to track seizures, to track meds, to plan on going to school, to plan on going on vacation, to plan on living your life

It was a precious find today.  I wish I had been thinking ahead more to have visited here way sooner but better late than never


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